{"id":206867,"date":"2026-07-13T23:28:27","date_gmt":"2026-07-13T22:28:27","guid":{"rendered":"https:\/\/helloproject.es\/vigilancia\/celebrado-encuentro-fenvisat-2026-creer-2\/"},"modified":"2026-07-13T23:28:27","modified_gmt":"2026-07-13T22:28:27","slug":"celebrado-encuentro-fenvisat-2026-creer-2","status":"publish","type":"post","link":"https:\/\/helloproject.es\/vigilancia\/celebrado-encuentro-fenvisat-2026-creer-2\/","title":{"rendered":"Celebrado Encuentro Fenvisat 2026 Creer"},"content":{"rendered":"<p>Del 9 al 12 de julio, el Centro de Referencia Estatal de Atenci\u00f3n a Personas con Enfermedades Raras y sus Familias (Creer), del <abbr title=\"Instituto de Mayores y Servicios Sociales\">Imserso<\/abbr> en Burgos, ha acogido la celebraci\u00f3n del Encuentro Nacional de la Federaci\u00f3n Nacional de V\u00edctimas del S\u00edndrome del Aceite T\u00f3xico.<\/p>\n<p>La cita, que ha reunido en el <abbr title=\"Centro de Referencia Estatal de Atenci\u00f3n a Personas con Enfermedades Raras y sus Familias\">Creer<\/abbr> a una treintena de personas afectadas, familiares y profesionales en un espacio com\u00fan de convivencia, formaci\u00f3n y apoyo mutuo, ha servido para conmemorar el 45.\u00ba aniversario de la Federaci\u00f3n Nacional de V\u00edctimas del S\u00edndrome del Aceite T\u00f3xico (Fenvisat) y recordar a las personas fallecidas, poner en valor la trayectoria del movimiento asociativo y reflexionar sobre los retos presentes y futuros en la atenci\u00f3n a las personas afectadas.<\/p>\n<p>La jornada principal celebrada el viernes 10 de julio se inaugur\u00f3 con las intervenciones del presidente de <abbr title=\"Federaci\u00f3n Nacional de V\u00edctimas del S\u00edndrome del Aceite T\u00f3xico\">Fenvisat<\/abbr>, Miguel \u00c1ngel S\u00e1nchez \u00c1vila, quien dedic\u00f3 un recuerdo a las v\u00edctimas fallecidas y dio paso a un minuto de silencio en su memoria. Tambi\u00e9n participaron en el acto inaugural el director del <abbr title=\"Centro de Referencia Estatal de Atenci\u00f3n a Personas con Enfermedades Raras y sus Familias\">Creer<\/abbr>, Aitor Aparicio Garc\u00eda; el subdirector adjunto para el <abbr title=\"S\u00edndrome del Aceite T\u00f3xico\">SAT<\/abbr> del Instituto Nacional de la Seguridad Social (INSS), Jos\u00e9 Miguel Iglesias Iglesias; y el miembro de la junta directiva de <abbr title=\"Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras\">Feder<\/abbr>, Ricardo Fern\u00e1ndez Morueco.<\/p>\n<p>El programa cient\u00edfico incluy\u00f3 una actualizaci\u00f3n sobre el s\u00edndrome del aceite t\u00f3xico, impartida por las doctoras Montserrat Morales Conejo y Lorena Salmer\u00f3n Godoy, del Servicio de Medicina Interna de la Unidad Funcional del Hospital Universitario 12 de Octubre, junto con la intervenci\u00f3n, por videoconferencia, de Eva Bermejo S\u00e1nchez, directora del Instituto de Investigaci\u00f3n de Enfermedades Raras (IIER) del Instituto de Salud Carlos III (ISCIII). Asimismo, el doctor Joubin Keyhani Vaghefi, jefe de la Unidad de Neuromodulaci\u00f3n del Hospital Santa Elena de Madrid, present\u00f3 los avances en neuromodulaci\u00f3n aplicados a la mejora de la sintomatolog\u00eda neurol\u00f3gica en pacientes con s\u00edndrome del aceite t\u00f3xico.<\/p>\n<p>La jornada continu\u00f3 con una sesi\u00f3n dedicada a los objetivos y la misi\u00f3n de <abbr title=\"Federaci\u00f3n Nacional de V\u00edctimas del S\u00edndrome del Aceite T\u00f3xico\">Fenvisat<\/abbr>, en la que las personas participantes pudieron compartir propuestas y experiencias para seguir fortaleciendo la labor de la Federaci\u00f3n.<\/p>\n<p>Adem\u00e1s de las sesiones formativas, el encuentro incluy\u00f3 actividades orientadas al bienestar y la convivencia, como una actividad musical, una sesi\u00f3n de terapia asistida con animales y distintos espacios de encuentro entre las personas asistentes.<\/p>\n<p>La Federaci\u00f3n Nacional de V\u00edctimas del S\u00edndrome del Aceite T\u00f3xico (Fenvisat) trabaja en la defensa de los derechos de las personas afectadas, promoviendo una atenci\u00f3n sanitaria y social adecuada, impulsando la investigaci\u00f3n sobre esta enfermedad y preservando la memoria de quienes han convivido y conviven con sus consecuencias.<\/p>","protected":false},"excerpt":{"rendered":"<p>Del 9 al 12 de julio, el Centro de Referencia Estatal de Atenci\u00f3n a Personas con Enfermedades Raras y sus Familias (Creer), del Imserso en Burgos, ha acogido la celebraci\u00f3n del Encuentro Nacional de la Federaci\u00f3n Nacional de V\u00edctimas del S\u00edndrome del Aceite T\u00f3xico. La cita, que ha reunido en el Creer a una treintena [&hellip;]<\/p>\n","protected":false},"author":5,"featured_media":0,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[5],"tags":[],"class_list":["post-206867","post","type-post","status-publish","format-standard","hentry","category-noticias"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v20.9 (Yoast SEO v28.0) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Celebrado Encuentro Fenvisat 2026 Creer - bip4ex<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/helloproject.es\/vigilancia\/celebrado-encuentro-fenvisat-2026-creer-2\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Celebrado Encuentro Fenvisat 2026 Creer\" \/>\n<meta property=\"og:description\" content=\"Del 9 al 12 de julio, el Centro de Referencia Estatal de Atenci\u00f3n a Personas con Enfermedades Raras y sus Familias (Creer), del Imserso en Burgos, ha acogido la celebraci\u00f3n del Encuentro Nacional de la Federaci\u00f3n Nacional de V\u00edctimas del S\u00edndrome del Aceite T\u00f3xico. 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