{"id":207052,"date":"2026-07-20T09:28:15","date_gmt":"2026-07-20T08:28:15","guid":{"rendered":"https:\/\/helloproject.es\/vigilancia\/celebrado-congreso-aeppeva-2026-creer\/"},"modified":"2026-07-20T09:28:15","modified_gmt":"2026-07-20T08:28:15","slug":"celebrado-congreso-aeppeva-2026-creer","status":"publish","type":"post","link":"https:\/\/helloproject.es\/vigilancia\/celebrado-congreso-aeppeva-2026-creer\/","title":{"rendered":"Celebrado Congreso Aeppeva 2026 Creer"},"content":{"rendered":"<p>Del 15 al 19 de julio, el Centro de Referencia Estatal de Atenci\u00f3n a Personas con Enfermedades Raras y sus Familias (Creer), del <abbr title=\"Instituto de Mayores y Servicios Sociales\">Imserso<\/abbr>, ha acogido la celebraci\u00f3n del III Congreso Nacional de Enfermedades Autoinmunes Ampollosas, organizado por la Asociaci\u00f3n Espa\u00f1ola de P\u00e9nfigo, Penfigoide y otras Enfermedades Ampollosas (Aeppeva).<\/p>\n<p>Una veintena de personas se han reunido en Burgos con el objetivo de actualizar conocimientos y compartir los \u00faltimos avances sobre estas patolog\u00edas, compartir experiencias y fortalecer la colaboraci\u00f3n entre el \u00e1mbito sanitario.<\/p>\n<p>La inauguraci\u00f3n cont\u00f3 con la participaci\u00f3n de Aitor Aparicio, director del <abbr title=\"Centro de Referencia Estatal de Atenci\u00f3n a Personas con Enfermedades Raras y sus Familias\">Creer<\/abbr>; Pedro L. de la Fuente, subdelegado del Gobierno en Burgos; Juan Carlos Aparicio, colaborador de honor de <abbr title=\"Asociaci\u00f3n Espa\u00f1ola de P\u00e9nfigo, Penfigoide y otras Enfermedades Ampollosas\">Aeppeva<\/abbr>; y Esther C\u00e1mara, presidenta de la asociaci\u00f3n.<\/p>\n<p>Durante las jornadas cient\u00edficas se abordaron aspectos fundamentales relacionados con las enfermedades autoinmunes ampollosas, desde el concepto de enfermedad rara y los recursos disponibles para las personas afectadas hasta los avances en investigaci\u00f3n, el registro de pacientes y la importancia de los biobancos. Tambi\u00e9n se analizaron las enfermedades raras en dermatolog\u00eda, las distintas formas cl\u00ednicas de estas patolog\u00edas, sus tratamientos y los retos que plantean en la pr\u00e1ctica asistencial.<\/p>\n<p>El programa cont\u00f3 con la participaci\u00f3n de especialistas de reconocido prestigio procedentes de hospitales y centros de referencia de toda Espa\u00f1a, como el Hospital Universitario La Paz, el Hospital Cl\u00ednic de Barcelona, el Hospital Universitario Ram\u00f3n y Cajal, el Hospital Universitario Infanta Leonor, el Hospital Virgen de la Victoria de M\u00e1laga y el Instituto de Investigaci\u00f3n de Enfermedades Raras (IIER), quienes compartieron los \u00faltimos avances en diagn\u00f3stico, tratamiento e investigaci\u00f3n.<\/p>\n<p>Adem\u00e1s del enfoque m\u00e9dico, el congreso puso de relieve la importancia del abordaje multidisciplinar mediante ponencias dedicadas a la nutrici\u00f3n, la fisioterapia, los cuidados de enfermer\u00eda y el papel de las asociaciones de pacientes como elemento clave para el acompa\u00f1amiento, la informaci\u00f3n y la defensa de los derechos de las personas con enfermedades raras.<\/p>\n<p>El programa se complet\u00f3 con actividades de convivencia y bienestar, entre ellas un taller de risoterapia y diversas actividades culturales por la ciudad de Burgos, favoreciendo el intercambio de experiencias y el fortalecimiento de la red de apoyo entre las personas participantes.<\/p>\n<p>La clausura del congreso cont\u00f3 con la participaci\u00f3n de Marta Puente, gerente de Salud de Burgos; Milagros del Campo, concejala de Servicios Sociales del Ayuntamiento de Burgos; y Esther C\u00e1mara, presidenta de <abbr title=\"Asociaci\u00f3n Espa\u00f1ola de P\u00e9nfigo, Penfigoide y otras Enfermedades Ampollosas\">Aeppeva<\/abbr>.<\/p>\n<p>El p\u00e9nfigo, el penfigoide y otras enfermedades ves\u00edculoampollosas constituyen un grupo de enfermedades raras en las que el sistema inmunitario ataca por error componentes de la piel y las mucosas, provocando ampollas y lesiones que pueden afectar de forma importante a la calidad de vida de las personas que las padecen. Su diagn\u00f3stico suele ser complejo y requiere una atenci\u00f3n especializada y multidisciplinar.<\/p>","protected":false},"excerpt":{"rendered":"<p>Del 15 al 19 de julio, el Centro de Referencia Estatal de Atenci\u00f3n a Personas con Enfermedades Raras y sus Familias (Creer), del Imserso, ha acogido la celebraci\u00f3n del III Congreso Nacional de Enfermedades Autoinmunes Ampollosas, organizado por la Asociaci\u00f3n Espa\u00f1ola de P\u00e9nfigo, Penfigoide y otras Enfermedades Ampollosas (Aeppeva). Una veintena de personas se han [&hellip;]<\/p>\n","protected":false},"author":5,"featured_media":0,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[5],"tags":[],"class_list":["post-207052","post","type-post","status-publish","format-standard","hentry","category-noticias"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v20.9 (Yoast SEO v28.0) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Celebrado Congreso Aeppeva 2026 Creer - bip4ex<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/helloproject.es\/vigilancia\/celebrado-congreso-aeppeva-2026-creer\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Celebrado Congreso Aeppeva 2026 Creer\" \/>\n<meta property=\"og:description\" content=\"Del 15 al 19 de julio, el Centro de Referencia Estatal de Atenci\u00f3n a Personas con Enfermedades Raras y sus Familias (Creer), del Imserso, ha acogido la celebraci\u00f3n del III Congreso Nacional de Enfermedades Autoinmunes Ampollosas, organizado por la Asociaci\u00f3n Espa\u00f1ola de P\u00e9nfigo, Penfigoide y otras Enfermedades Ampollosas (Aeppeva). 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