{"id":207095,"date":"2026-07-21T09:52:33","date_gmt":"2026-07-21T08:52:33","guid":{"rendered":"https:\/\/helloproject.es\/vigilancia\/encuentro-fedaes-2026-creer\/"},"modified":"2026-07-21T09:52:33","modified_gmt":"2026-07-21T08:52:33","slug":"encuentro-fedaes-2026-creer","status":"publish","type":"post","link":"https:\/\/helloproject.es\/vigilancia\/encuentro-fedaes-2026-creer\/","title":{"rendered":"Encuentro Fedaes 2026 Creer"},"content":{"rendered":"<p>El Centro de Referencia Estatal de Atenci\u00f3n a Personas con Enfermedades Raras y sus Familias (Creer), del <abbr title=\"Instituto de Mayores y Servicios Sociales\">Imserso<\/abbr>, acoge del 21 al 26 de julio el <a href=\"https:\/\/imserso.es\/web\/creer\/agenda\/agenda-dia?p_p_id=com_imserso_publicador_PublicadorPortlet_INSTANCE_To7lOFNGYbNm&amp;p_p_lifecycle=0&amp;p_p_state=normal&amp;p_p_mode=view&amp;_com_imserso_publicador_PublicadorPortlet_INSTANCE_To7lOFNGYbNm_fechainicioevento=21-07-2026#evento_id_11811680\">Encuentro Nacional de la Federaci\u00f3n de Ataxias de Espa\u00f1a (Fedaes)<\/a>.<\/p>\n<p>El encuentro reunir\u00e1 en el <abbr title=\"Centro de Referencia Estatal de Atenci\u00f3n a Personas con Enfermedades Raras y sus Familias\">Creer<\/abbr> a personas con ataxia, familiares y profesionales con el objetivo de compartir experiencias, fortalecer las redes de apoyo y promover el intercambio de conocimientos.<\/p>\n<p>Durante toda la semana se desarrollar\u00e1n actividades formativas, terap\u00e9uticas y de convivencia. El programa incluye talleres sobre apoyo psicosocial, afrontamiento de la enfermedad, transferencias y productos de apoyo y logopedia, impartidos por profesionales del <abbr title=\"Centro de Referencia Estatal de Atenci\u00f3n a Personas con Enfermedades Raras y sus Familias\">Creer<\/abbr> y de <abbr title=\"Federaci\u00f3n de Ataxias de Espa\u00f1a\">Fedaes<\/abbr>. Adem\u00e1s, se celebrar\u00e1n una sesi\u00f3n de terapia asistida con animales, un taller de musicoterapia, visitas guiadas por la ciudad de Burgos y espacios diarios de convivencia que favorecer\u00e1n el intercambio de experiencias y el apoyo mutuo entre las personas asistentes.<\/p>\n<p>Se entiende por \u201cAtaxia\u201d el trastorno caracterizado por la disminuci\u00f3n de la capacidad de coordinar los movimientos, manifest\u00e1ndose como temblor de partes del cuerpo durante la realizaci\u00f3n de movimientos voluntarios, como dificultad para realizar movimientos precisos o como dificultad para mantener el equilibrio de la postura corporal. La ataxia no es una enfermedad en s\u00ed misma, sino un s\u00edntoma caracter\u00edstico de m\u00e1s de trescientos procesos degenerativos que cursan adem\u00e1s de ataxia otros muchos s\u00edntomas (deformidades esquel\u00e9ticas, cardiopat\u00edas, diplop\u00eda, disartria, diston\u00eda muscular, diabetes, disminuci\u00f3n sensorial, infecciones pulmonares por atragantamientos, linfomas y leucemias, etc.), que var\u00edan seg\u00fan el tipo de ataxia.<\/p>","protected":false},"excerpt":{"rendered":"<p>El Centro de Referencia Estatal de Atenci\u00f3n a Personas con Enfermedades Raras y sus Familias (Creer), del Imserso, acoge del 21 al 26 de julio el Encuentro Nacional de la Federaci\u00f3n de Ataxias de Espa\u00f1a (Fedaes). El encuentro reunir\u00e1 en el Creer a personas con ataxia, familiares y profesionales con el objetivo de compartir experiencias, [&hellip;]<\/p>\n","protected":false},"author":5,"featured_media":0,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[5],"tags":[],"class_list":["post-207095","post","type-post","status-publish","format-standard","hentry","category-noticias"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v20.9 (Yoast SEO v28.0) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Encuentro Fedaes 2026 Creer - bip4ex<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/helloproject.es\/vigilancia\/encuentro-fedaes-2026-creer\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Encuentro Fedaes 2026 Creer\" \/>\n<meta property=\"og:description\" content=\"El Centro de Referencia Estatal de Atenci\u00f3n a Personas con Enfermedades Raras y sus Familias (Creer), del Imserso, acoge del 21 al 26 de julio el Encuentro Nacional de la Federaci\u00f3n de Ataxias de Espa\u00f1a (Fedaes). 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